Friday, May 30, 2008

Friday, May 30th, 2008

I met my parents over at Dr Field's office around 1130 for my dads follow up. The showed us how to feed my dad through his feeding tube and how to clean it out. It was pretty gross but cool at the same time. He took all my dads staples out which was also cool to watch. He gave my dad some more pain medication and told my dad to follow up in 2 weeks.

Dad looked as if he was having a good day today. He told the doctor he was ready to try to quit smoking and asked for the patch. The doctor gave him a quick do's and don'ts while on the patch and then gave him an RX.

My mom was having some insurance problems with an injection my dad has to have every month. The insurance was refusing to pay, so I called them. Just an insurance thing so they gave me a number for the Dr to call for an override. Mom said they approved 4 shots for 50 bucks now, so it should not be a problem again.

My mom, dad, and I went to eat Fajitas at Taco Cabana and my dad ate just fine, so all in all today was a good day.

My mom started my dad on some stuff called Reliv. Have any of you heard of this and if you have tell me what you thought about it.

Wednesday, May 28, 2008

Wednesday - May 28th 2008

I took my dad to see Dr Suki today around 12:15. They gave my dad a handful of RX's and then shipped us off to this huge room full of patients getting chemo. It was so over whelming but we got shipped around to the right offices and right desks to get everything set up. My dad starts chemo next Wednesday. They gave us a ton of information to read so we can be more prepared for what to face.

He has a few more follow up Dr Appts this Friday and one next Tuesday.

I hope some of this medication will do "some kinda good" tonight. I will wait to see what my mom says in the morning to determine what's what.

Sunday, May 25, 2008

5/25/08 - 4:30 p.m.

It was not a good day. My dad is in horrible pain again. Not only does he have to sit around his house in horrific pain he also has to deal with his 25 year old son who is mooching off him.

His 25 year old son has moved back home and is asking my dad to give him his own medication he takes for pain. My stupid drug addict brother is going to make it where my dad is going to have no pain medication because his son can't handle his own freaking life.

I need help. I don't know how to deal with this. I just can't stand it anymore. I called him today and told him he was a piece of shit, and all he could say was thanks!

Any advice helps.....

Friday, May 23, 2008

Evening Update 5/23/08

Matt and I visited my dad for a few hours today. We left around 330 or 4 today. The doctors were talking about letting him go home tonight. They took the epidural and his catheter out and as long as he could urinate on his own they would let him go.

Well all went well and my dad was out of the hospital by 6pm. He has a follow up visit in about a week. Until then he is going to heal up at home and wait to start chem in a few weeks.

The other news is the surgeon told my dad his cancer is a stage 3 not a stage 4. He also told my dad that out of our 22 lymph nodes he has 5 infected which are all around my dads neck. So he said it was not as bad as it could have been which give us a little more hope.

My dad is ready to fight this colon cancer.

5/21 - 5/23 2008

My dad has done a complete 180 degree turn. The first day after surgery I showed up at the hospital around 9am and spent the night. I observed so many freaking amazing things happen it has blown my mind. I say this because the first Dr we saw at Sadler Clinic was not even going to operate, so please keep that in mind when you read this….

The morning after surgery my dad was already saying “I’m hungry, when can I eat?” The pain that showed on his face 24/7 is under control. He is laughing and cutting up with the nurses, pretty much back to his old self. He is already getting up and out of bed, walking around. His kidneys are producing lots of urine which is a great sign. We played cards yesterday morning to pass the time before breakfast came because he just could not stop thinking about FOOD. He is ready to go home. He also has been wearing a patch to help with the nicotine. He has not really gripped about needing to go outside to smoke, I am super proud of him.

Mom stayed the night last night. I just called her and she gave me another great update. Dad saw two doctors yesterday. They said he was recovering great. They told him today he can start eating solid foods. As long as he tolerates that today he should be ready to go home on Saturday possibly.

Matt and I are going to visit for a little bit today.

Tuesday, May 20, 2008

5/19 & 5/20

My dad was admitted into the hospital around 3pm after a mix up, but I won't even go there. His room sucked. It was an ER Observation room until he went off to surgery this morning and then he got a nice tricked out room.

Last night was horrible to watch. He must have been up every hour on the hour. Even though they were dosing him with morphine every 2 hours and hydrocodone every 4 hours about 8 am this morning he said his pain was about a 1. That was awesome considering he told me last night on a scale of 1-10 what his pain level was and he said a 14. No matter if the pain is a 1 or a 14 he can't ever get comfortable.

He had surgery this morning around 11 and it was done about 1. They removed a mass from his colon near the hepatic flexure. The tumor was softball size. He said he did not really see any signs of spread to the lymph nodes or to any other parts of the colon. They put a port in for my dads chemotherapy as well as a feeding tube in case he can't eat after the surgery.

My mom is staying the night tonight. I am going back in the morning to stay tomorrow night.

Monday, May 19, 2008

5/19.2008

My dad had a 10 am visit with Dr Suki. He told my dad he had everything ready for him to go to the hospital. He will have surgery in the morning. I am going to stay the night with him tonight.

The PetScan showed that he had metastasis to both adrenal glands, the liver, the colong, the neck muscles, and to both lungs.

My dad will be in the hospital for about a week and then Dr Suki said Chemo will start.

Here we go....

Friday, May 16, 2008

5/16/2008

8:00 am - I had Lasik Surgery this morning. That went well but I wish I had waited...you'll see why below...

945 am -Dad saw Dr Suki this morning an he confirmed it is COLON CANCER. Dr Suki said he had never seen anything like this. He said it had spread to the muscle's in his neck and this could be why he is in so much pain.

1145am - Dad headed over to get the colonoscopy and endoscopy(sp?). The doctor told my dad he needed to have surgery now. He said the obstruction in his colon had almost completley blocked the ascending colon. Dad refused to go today. He has family coming in today and he wanted to see them.

This may be worse than we thought. So Monday we will see Dr Suki and my dad will probally be admitted into the hospital to have the cancer tumor thats on his colon removed.

Please pray for us.

Thursday, May 15, 2008

5/15/2008

I met my mom and dad over off Vision Park today so my dad could get the steroid x-ray foramen shot. That went pretty smooth and we were leaving the office around 8:45am. So I took my dad to my house until his next appointment.

Around 2:30 we left my house and headed to Kingwood for the PetScan. We got there around 3:09 since I got freaking lost in Kingwood.....anybody who knows me knows I suck at directions. BAD!!! I completed the paperwork for him and they took him back right at 315. He was done and out by 5pm.

He said the shots from this morning had not helped him at all yet. SO keep your fingers crossed that when he wakes up in the morning he will feel some relief.

Wednesday, May 14, 2008

5/14/2008

Met mom at The Woodlands Hospital around 10 a.m. and the Radiology department got my dad back and the nurse assigned to my dad was much better. Atleast that round of tests are done. At around 1 p.m. I took dad on home.

I asked my dad about the procedure and he said he was awake the whole time. They gave him morphine for pain and they cut about three or four pieces out of his neck. He said it was very painful even with the morphine. His Blood Pressure showed he was in a lot of pain. 154/109. My dad has never swallowed a pill in his life, but by the time we had left he had taken 4 Hydrocodones to ease the pain in his neck.

They told us to watch him and report if we had any problems or go to the E.R. is anything arose.

Tomorrow is a big day, he is going in for surgery at 7 a.m. for the steroid shots in his neck and then he has a PetScan around 315.

Tuesday, May 13, 2008

5/13/2008

We saw Dr. Suki today for a second opinion and things happened so fast after that. He took the scans read over the diagnosis and asked what had been done so far. He asked my dad a lot of questions and was very compassionate. His whole office staff was great. He said he did not think it was Colon Cancer; his medical opinion is that it is Lung Cancer. He said he wanted to get an Endoscopy, Colonoscopy, a biopsy, and a PetScan completed to confirm the diagnosis. He immediately called a gastrointestinal doctor and got an appointment scheduled that day for my dad. He also was able to schedule a PetScan for Thursday, and the gastrointestinal doctor scheduled the endoscopy/colonoscopy for Friday. This doctor seemed to understand the urgency or my dad’s situation. I can’t believe that he got all that scheduled so soon. In the middle of this appointment my dad’s first doctor’s office from Sadler Clinic called me and asked has anyone called you to reschedule your biopsy? We said no and explained we were getting a second opinion and that this doctor had set up many secondary tests. They were a little concerned I could tell and asked us to keep them in the loop.

So we are back to the beginning of trying to determine what type of cancer this is. Colon Cancer vs. Lung Cancer, don’t know which is better? Dr. Suki said that Colon Cancer normally does not metastasis to the adrenal gland but he has seen several cases where lung cancer does. Once the biopsy is completed tomorrow, we will be one step closer to a 100% diagnosis. The final nail in the coffin will be the results from the colonoscopy and endoscopy. The gastrointestinal doctor said he would be able to rule out colon cancer with the colonoscopy and endoscopy, the biopsy, and the Pet Scan. I just don’t understand why Sadler Clinic Doctor’s would cancel the PetScan they had originally scheduled and did not even refer us to a gastrointestinal specialist for a colonoscopy. I guess there is no reason to ask I should just be thankful that we are in more experienced hands.

We will be off for the biopsy in the morning; it’s at 10am in The Woodlands. I just hope for a different round of nurses this time.

Side note: Dr Sweeny, my dad's PCP, still has not called me about the neck brace. Even though we dont need it, it just chaps my hide that they have not called back. Damn Sadler Clinic....

Monday, May 12, 2008

5/12/08

Evening Update:

Mom was able to get an appt for my dad with the ortho doctor. I met her around 1pm today in The Woodlands. The doctor came in and said "Has anyone told you how bad your neck is and gone over any options?" We said no! So he said:

1-You have arthritis which has made the foramen (holes in spine where nerves come out) in your spine smaller.
2- You have 2 cervical disc's that are bulging into the foramen as well.
3-Your nerve's in the neck are being compressed because of the above

Wow, I bet he has been in a lot of pain. So the doctor said there are treatments that are non-surgical. He cleared it with my dads insurance and they made an appointment on Thursday. They have to do a x-ray foramen shot. Similar to an epidural but he has to be perfect...so they give him a mild sedative and place him under to do this shot.

Dr Tomaczek and his office personal were awesome! It was like they could tell he was in pain and wanted to get him in as soon as possible. I will be sending them a thank you letter for sure.

They also wrote my dad an RX for a soft cervicle collar and the insurance company paid for it. My dad's PCP office never called me again today. I called them Thursday and still no word on callin in a RX. We were lucky to get in to see this doctor today...

Tomorrow I am going to meet my parents at Dr Suki's office on 1960 around 10:45 for a second opinion on my dads case.

Wish us Luck!


Morning Update

The doctor we were to see this morning had a death in his family and had to cancel my dad's appointment this morning. It was moved to Tuesday morning at 10:45. It's disappointing but I totally understand the need.

Mom is trying to call a ortho doc so he can see my dad about these cervical disk bulges he has. These are what is creating so much pain...he has to get some freaking relief.

I called his PCP to ask when they are going to fax the Rx so we can get my dad a neck brace. No one ever works at the speed you need them to.

Friday, May 9, 2008

5/9/08

I met my parents at The Woodlands Hospital this morning around 7:30 a.m. Dad checked in but I could tell he was in a great deal of pain. He just had that look on his face. He needed something for pain right then and there.... Once we got back we talked to a nurse for the pain and asked if they could give my dad Advil, dad says that is what really helps my dads neck. I must say the nurses at the Hospital did not give me the feeling that they were there to help. As my dad was sitting in this room requesting something for pain the nurses proceeded to laugh in the hall way with another patient in front of my dads room. And not just a quick laugh I mean like joking and laughing for 5-6 minutes. That really frustrated him since he (we) had told them he needed something for pain asap. Anyway Dad told us he took Advil that morning at 4 and right then and there the doctor said we needed to reschedule. He said the pain he is having needs to get under control before they can do a biopsy. So we left. I stopped at Walgreens to pickup some advil and drove my dad to the chriopractor. After the visit, he looked so much better. I could tell it really helped him. Then after that I took him on home. I was able to make a few follow up calls to both of his doctors. One about the biopsy reschedule and pain meds the other about a neck brace. Finally was able to get the doctor to order my dad a neck brace to see if that will help his neck pain. He has some pretty big knots in his neck, shoulder, and upper back around the shoulder.

I left my parents house around 630pm today and my mom had just brought all my brothers kids home so I am sure that will cheer my dad up.

I plan to go back and stay the night on Sunday so I can take everyone to the doc Monday morning for a second opinion.

I read over a cancer policy, called them to understand the benefits, and read over some material my mom brought home. It's just devasting to me to have to look at all that stuff, will, burial plots, freaking cancer policies.... I guess the reality of this situation is starting to sink in.

Thanks to everyone who has called, texted, e-mailed, and shared your own stories.....

Your support and thoughts mean so much to our family.

Wednesday, May 7, 2008

5/7/2008

I stayed at my parents place last night just to get my own picture of how my dad really is. I can tell he is in a lot of pain, it's awful to see him like that.

Today we got a video and a care packet from Cancer Treatment Center Of America. I watched the video while my dad took one of his many naps. Its was sad, I cried. Dad finally watched it but I don't think he is comfortable flying across the U.S. to get treatment.

I called and made an appointment for The Houston Cancer Center in Kingwood. My dad's friend who also had colon cancer referred us to Dr Suki. We have an appointment for a second opinion on Monday.

This Friday he is going in to The Woodlands Hospital for a Biopsy, I am not quite sure why though.

My dad is frustrated because no one is helping him with his neck. This neck injury is what's really killing him. He can't turn his neck, he said it hurts to hold up his neck... He wants to go to the chiropractor tomorrow so I am going to go get him after my Lasik Eye appointment tomorrow.

The only thing that helps him right now is someone to constantly rub his neck and shoulder with Ben-Gay type ointment. Today Matt ordered some Bio Freeze for him, my dad says that really helps him.

My Dad and I watched a couple of movies Severance and No Country for Old Men, they were pretty good. It was nice to have time to spend with him, but it helped the reality set in.

We have got to find a medical supply store so we can get him a cervical collar. He thinks this will help him, so I am gonna make sure he gets it.

5/5/2008

We visited with the doctor today. He told us my dad has Stage IV Colon Cancer that has spread to his kidney, adrenal gland, liver, and lymph node(s). They are not going to operate since the cancer has spread so much. A biopsy is scheduled for Friday to "prove" to the insurance company that it is 100% cancer.

My dads options are to either fight it without chemo/radiation and they can dope him up so he is pain free until he dies or he can take chemo/radiation and fight it that way. This is all just to much to handle. I can't even imagine my life without my father. I just have to keep telling myself that he is going to beat it and be with us for a long time.
After Friday we will know when he starts treatment and what treatment means.
I am in such denial and shock!

5/2/08

I swear, Sadler Clinic must have lost their effin mind. So they call my dad, tell him he has cancer, and they wanted to cancel his follow up appointment until they get a biopsy. They tell him they are not going to operate, they are going to experiment. BullShit! So then his PCP calls and tells him again he has cancer and that it does not look good. Then this doctor proceeds to tell my dad "If you had done the colonoscopy I asked you to get 4/5 years ago it might not be as bad." Now what kinda doctor says this Shit. So I took matters into my own hands today. I told my parents let Sadler Clinic do the biopsy and then we are going to Cancer Centers of America. I called them today and it was so awesome to hear someone give me hope. The center is in IL and they pay round trip air fare for my dad and a family member ever time he needs treatment. So I think this is the route we are going to go. I can't believe that my dad has been told he has cancer but they have not completed a biopsy and neither could Cancer Centers of America.

5/1/2008

The doctor called my dad today. They said the tests they completed on Wednesday showed my dad has Colon Cancer. The cancer has spread to his lymph nodes. We are seeing the Oncologist Monday to determine the stage and what happens going forward. They told my dad they will not operate, but that they will try a new procedure.

4/30/2008

We are still in a waiting game, today my dad had to see his doctor who shared the news that he had cancer. Had to get a Cat Scan, give blood, and get instructions for his next steps. He has 2 appointments on Friday, has to complete a 24 hour urine test on Sunday, and has another appointment with the doctor on Monday. It's crazy how quickly things start to happen. You barley have any time to soak the information up before you are getting instructions on what you have to do next. I feel awful for my dad, I can tell he is overwhelmed and does not want anyone to know. This was what the Dr. said, he is 99.9% sure its cancer but he does not know where the cancer is. Not sure if its on the adrenal gland, kidney, or liver. He also mentioned that he needed to get a good look at my dad's stomach to make sure no cancer was their. He is possibly going to do a biopsy of the lymph node depending on the urinalysis results. So again we wait! Not knowing what type of cancer it is or how we are going to beat this shit. I feel so selfish when I say this but its my finals week and I am so drained already I just want it to go away for 2 weeks. Just so I could finish school without the extra stress. Guess life never works on your plans. More details to come.

4/28/2008

4/28/08 - You always think they are going to be here forever. I had to come to reality that the statement is not always true. My dad went in for a neck injury and the last Cat Scan showed a mass above his left kidney. The mass is 6cm by 3cm. He has swelling in his cervical "neck" lymph nodes but his PCP could not confirm if they are related. He asked my dad to see an Ongologist Wednesday at 8am. They have pretty much told my parents that it was cancer without saying its cancer. "They want him to see the specialist" I don't think I am ready to face this, so for now I am telling myself nothing has been confirmed, so what do I worry about?My dad is a fighter and if its cancer our motto will be "FUCK CANCER"We are going to see the Oncologist Wednesday morning (4/30/08) who has scheduled another CatScan as well. I hope the news is not to bad...I am hoping for good news. News we don't have to worry to much about. Please keep us in your thoughts.4/30/08 - We are still in a waiting game, today my dad had to see his doctor who shared the news that he had cancer. Had to get a Cat Scan, give blood, and get instructions for his next steps. He has 2 appointments on Friday, has to complete a 24 hour urine test on Sunday, and has another appointment with the doctor on Monday. It's crazy how quickly things start to happen. You barley have any time to soak the information up before you are getting instructions on what you have to do next. I feel awful for my dad, I can tell he is overwhelmed and does not want anyone to know. This was what the Dr. said, he is 99.9% sure its cancer but he does not know where the cancer is. Not sure if its on the adrenal gland, kidney, or liver. He also mentioned that he needed to get a good look at my dad's stomach to make sure no cancer was their. He is possibly going to do a biopsy of the lymph node depending on the urinalysis results. So again we wait! Not knowing what type of cancer it is or how we are going to beat this shit. I feel so selfish when I say this but its my finals week and I am so drained already I just want it to go away for 2 weeks. Just so I could finish school without the extra stress. Guess life never works on your plans. More details to come.